Archive for June, 2011

NORD Responds to JAMA Article Claiming Drugs for Rare Diseases Such as Mesothelioma Could Have Safety Issues

The National Organization for Rare Disorders (NORD) responded to the editors of the Journal of the American Medical Association (JAMA) regarding an article they recently published claiming that orphan disease clinical trials may not be managed as rigorously as those for other illnesses.  There are close to 7,000 rare diseases in the United States, and many [...]

FDA Advisors Vote Unanimously That Avastin Approval Should Be Withdrawn, And You Could Hear The Pain

The votes are in, and the Food and Drug Administration’s Advisory Committee said unanimously that the approval of Avastin (bevacizumab) for the treatment of metastatic breast cancer should be withdrawn.   The decision did not go down quietly, with women loudly voicing their disagreement, and one saying that this shouldn’t be happening in the United States of [...]

NY Mesothelioma Lawyer: Veterans Exposed To Asbestos Deserve Just Compensation

A recently released study shines light on the devastating effect of mesothelioma on veterans who served from World War II through the Vietnam era, New York asbestos exposure attorney Joseph W. Belluck said. The study presented at the American Society of Clinical Oncology conference and published in the Journal of Clinical Oncology analyzed 928 veterans. [...]

The FDA’s Decision to Remove Approval for Avastin in Metastatic Breast Cancer is Caught Between Data and Emotion

I attended a hearing today held by the Food and Drug Administration outside of Washington DC on the question of whether or not Avastin® (bevacizumab) should retain approval for the treatment of metastatic breast cancer.  As one might expect, the experience ran the gamut from deeply felt emotions to cold hard statistics.   The presentations [...]

Reaching Out to Your Loved One Diagnosed With Mesothelioma

When someone is diagnosed with mesothelioma, more than likely there are hundreds of questions running through their mind such as, “What does this mean?” “What will happen next?” “What kind of treatment will I need?”  The most burning question, however, is usually “How will my family and I get through this?”  The patient and his [...]

UH Cancer Center Receives Multi-Million Dollar Mesothelioma Research Donation

Michele Carbone, MD, PhD, the country’s premier authority on mesothelioma and director of the University of Hawaii Cancer Center, now has the benefit of a $ 3.6 million donation to boost his mesothelioma research budget.  The donation, given anonymously last week, is the second largest gift ever given to the University.  The dollars are designated [...]

Human–Genome Sequencing Moves Personalized Medicine Closer to Reality for Mesothelioma Patients

By Nancy MeredithWhen researchers on the U.S. Human Genome Project completed mapping the entire spectrum of genetic materials that can be found in humans, they moved medicine beyond the traditional trial-and-error method of treating and diagnosing diseases to an approach where a person’s genetic makeup can be used to tailor their medical care.   Patient-centric treatment [...]

Financial Assistance for Cancer Patients

Cancer can be a financial burden for patients and their families due to the increased medical and prescription expenses incurred. In addition, unanticipated costs such as childcare, employment, transportation and household expenses all contribute to the need for financial assistance for cancer patients. The key to navigating the financial issues is communication. First and foremost, [...]

Load Up on Protein to Slow Growth of Mesothelioma Tumors

In a new study from the British Columbia Cancer Research Centre, researchers found that eating a diet low in carbohydrates and high in protein may slow the growth of tumors.  Although the study was conducted on mice, the scientists involved believe that the findings are “definitive enough that an effect in humans can be considered.” [...]

“CANCER” is a six-letter word

My husband was sent to the hospital a few months ago with familiar symptoms: abdominal pain radiating to his back. We expected the usual myriad of tests to provide the same result we had experienced before: ulcers. Ulcers are no piece of cake, but treatable. But now: cancer. Seriously? Our first reaction was to go [...]